Well, obviously, I am getting a little busier these days, as my posts are a little slower to come. ;)
I have had so much to think about! The appointments with the genetic specialist were really amazing! First of all, they were very straight forward. We went down the list of genetic issues and he went over our health history (which is something he wanted in my own words). He took the combined information and asked some more questions, and went over everything, "prescribing" the special supplements for what he felt would help. This was extremely helpful. All supplements are natural and are formulated to be easily broken down by the body. And really, they were kind of custom to the person. He explained how each genetic issue affected another....that MTHFR may not be the worst for me, but it affects all of the other genes, and every system in the body! He addressed problems with the boys such as A.D.D., sensory integration issues, temperament, and more. That part was something that I hadn't dared to hope for help with, though I am not sure why....MTHFR1298 is known for causing more mental issues than the 677. With the younger boys, having one copy of each, he said that they had the worst possible combination you can have...but that there was hope for them. And considering that these genetic issues affect a person's ability to detox-both regular toxins and used up hormones- it is important for someone with Lyme.
So we are to get lots of supplements for all, and it will be very expensive. There is not much getting around it, however. (Inconvenient, as Jerry's local work ended; I just am not ready for him to pick up work far out of town.) These mutations also make it more likely for my kids and I to get cancer, etc. But just having help for all of the sensory issues, etc. would make life easier! So on one hand, I will be spending lots of time each day getting supplements down people; on the other hand, I should have more energy to do so, and spend less on getting kids through homework, for instance! It just seems like it will be a different way of thinking altogether, health-wise, and I am still trying to wrap my brain around it all. Oh...also, we all have the Warrior gene....great!
So as far as genetic issues go, I strongly recommend doing the 23andme test. (You don't have to agree to have your results used for a study and all of that.) Then I advice taking your results to Dr. Youngberg (the specialist). He charges $150 an hour, and is worth every penny! Oh...the beauty of it all is that he does phone consults, so you don't have to go anywhere. :)
http://dryoungberg.com/
1. 23andme....$100
2. Genetic Genie (run your results through it)....$10
3. Dr. Youngberg (take results to him)....$150
4. Order supplements
Dr. Youngberg did order up some blood work for the kids and I (for me, hormone tests; for them, how much they are in need of the methylation help right now, before starting them on the MTHFR/methylation supplements).
Otherwise, things are going along smoothly. When Dr. Youngberg asked how the current supplements were helping, I realized that I hadn't been sick since I started them! Usually, I get every single thing that comes along. I finally got a cold over Thanksgiving, but otherwise...pretty amazing! Energy-wise I am way better, though I am not sure if this is 100% due to the supplements, or my Rife treatments, which I continue to do every week faithfully.
I drive myself to all local appointments, do lots of dishes, laundry, most of the cooking (though Jerry will likely pick that back up, now that he is home)....I even get the kids from school about once a week, sometimes more. It tires me out to do it, but I manage. Sometimes I can still get dinner on at a reasonable hour, too. (At first, it seemed that I would be so wiped out afterward that I couldn't get dinner together.) It's all still a struggle, plus helping with homework, etc....but there is obvious progress there. I even ran a couple of little errands yesterday, and did 2 appointments in a day. I don't seem to need as much sleep, either. :)
Other care: massage was so helpful, I think, for detox, but I won't be able to keep it up. I am definitely going to keep up on chiropractic, as I still do lots of sitting breaks, and I think it's so important to keep that energy flowing through the spine! Now I just need to order the remaining supplements and begin them.
I have work to do, so I won't make this much longer, but here are some samples of what Dr. Youngberg put me on:
-Inflammacore...a shake to help with leaky gut and inflammation. He said that, given my symptoms plus skin trouble (eczema and acne), he thought that this was an issue. I am to be on this for 3 months. It contains nice things like turmeric, as well.
-Neuro-immune Stabilizer Cream
-Ortho-omega fish oils, which he placed at the top of the list for helping all
-Of course, the special supplement for MTHFR....Cerefolin (there are other kinds available)
-Bio-D-Mulsion Forte because my Vitamin D receptors aren't functioning properly (incidentally, he said that because of this, my D numbers have to be between 80-100...higher than other folks)
Also, going over a note from a friend who is a chiropractor....he suggested Diatomaceous Earth for detox...it's about $10 on Amazon. :) I may try that in the future, as well, if still needed. I wonder if my whole life will change with the methylation help...I am so used to having to worry about detox!